Tourette's Syndrome
(Gilles de la Tourette Syndrome · GTS · Tourette's)
In this condition factsheet:
The Facts on Tourette's Syndrome
Tourette syndrome (TS), named after the French neurologist who first described it, is a neurological disorder characterized by motor tics (brief, non-rhythmic, stereotyped movements) and vocal tics.
TS is usually first noticed in childhood between 2 and 15 years of age. Depending on how strictly it's defined, experts estimate that TS affects 1 in 100 people. Boys are 4 times more likely to be diagnosed with this condition than girls.
Although there is no cure for TS, most people do not need medical treatment if symptoms aren't bothersome. Severe cases of TS can cause behaviour that many people find bizarre, rude, or alarming. Many people who have heard of this condition associate it with loud and uncontrollable swearing. This is one possible symptom of TS, but it's a fairly rare one. Most people with TS have much less severe tics.
People with TS may also have other associated behaviours or symptoms, such as attention deficit hyperactivity disorder (ADHD) or obsessive-compulsive disorder (OCD). Not everyone with TS has these conditions and the link between TS and these conditions is unclear.
The symptoms of TS usually improve during late teenage years, but other medical conditions associated with TS, such as depression and anxiety, may continue into adulthood. People with TS have a normal life expectancy and intelligence.
Causes of Tourette's Syndrome
Although the exact cause of TS is unknown, researchers believe that is it likely caused by changes in certain areas of the brain as well as imbalances of the chemical messengers in the brain (such as dopamine, serotonin, and norepinephrine).
Genetics and family history also play a role. TS was once thought to be genetically inherited as a dominant trait, but recent studies show that the genetics of TS is much more complicated.
Children of parents with TS may not develop TS at all or may develop TS with varying degrees of severity. And some people who have TS have no family history of the condition. Boys born to a parent with TS are more likely than girls to have the condition. Girls, however, are more likely to have associated behaviour conditions such as OCD.
Environmental factors may also play an important role in the development of TS.
Symptoms and Complications of Tourette's Syndrome
The symptoms of TS usually appear before the age of 18. If they develop afterwards, TS is unlikely to be diagnosed because the symptoms are usually less severe or are attributed to other medical conditions. Symptoms are often worse before the mid-teens and improve as the person gets older. But for about 10% of people with TS, the symptoms get progressively worse into adulthood.
Most people with TS have simple motor and vocal tics. Continual eye blinking is one of the most common simple motor tics. Others include grimacing, head jerking, shrugging, and leg tapping. Simple vocalizations can include constant throat clearing, sniffing, grunting, barking, or other noises.
Some people with TS experience more complex motor and vocal tics that involve more muscles and more complicated movements. Complicated motor tics include shrugging combined with head jerking, copying other people's movements (echopraxia), sniffing objects, touching other people, and, very rarely, self-harming behaviours such as banging the head or biting the lip.
Complex vocal tics can involve words and groups of words, including repeating other people's words (echolalia) and loud swearing and cursing (coprolalia).
Coprolalia is a symptom popularly associated with TS, but only a minority of people have this symptom. Many people with TS can control their symptoms for a few minutes to hours at a time, but it's like trying to hold back a sneeze. It must eventually come out, and it's likely to come out in a bigger way if it's delayed.
People with TS often find that their symptoms get worse when they're nervous, anxious, or tired and ease when they're relaxed or concentrating hard on something.
People with TS may also have other conditions that affect their behaviour. Obsessive-compulsive disorder (OCD) and attention deficit hyperactivity disorder (ADHD) are very common in people with TS. These additional conditions may cause more functional and social problems for people with TS than the tics caused by TS.
ADHD is characterized by poor attention span and impulsive behaviours, whereas OCD involves repetitive and intrusive thoughts or repetitive behaviours. In adults, this often involves habits like continually checking that the door is locked, making sure the oven is turned off, or endless hand washing. A typical OCD behaviour in children is touching something with one hand, then feeling like they must "even things out" by touching it with the other hand.
People with TS may also be more at risk of experiencing depression and anxiety.
